Why???

Well.. Today during rounds the team of Drs. that come in and decided the changes going to be made for Shawn. They mentioned that Shawn's liver has dropped again ( sign of heart failure). his work of breathing is continuing , and he is not gaining weight... I asked the Cardio who was in the room how the Echo that he had yesterday went.. She hesitated and I could tell she was looking for the right words to say to me. She told me that the squeeze isn't as strong as it once was and that there is leakage of some sort happening.... and during rounds they did mention heart failure but never told me straight up that this was the case. I  feel as the Drs. are leaving out some information and not telling me anything just yet? Why I keep asking myself, why wont they just tell me what is actually happening to my son. WHY?WHY?WHY?...  I am currently waiting to meet with the social worker and I hope she will be able to help me find out the questions I still have. If Shawn is in the stages of HF, why can't they just tell me that? Is it cause they are not 100 percent sure? 


I guess all we can do right now is pray for baby Shawn. Like I always have  I will contiune to do so.


The reason why I started this blog is so that people can hear Shawn's journey. People often dont realize this but KIDS DO HAVE HAERT PROBLEMS TOO!. I know I never thought that a baby could be born with a heart problem I just thought that was somnething that happened in older people. This has really opened my eyes to the "REAL" World. please share my blog with people. I want poeple to me more aware of this "REAL" World...

JESUS I TRUST IN YOU .